Welcome to My Blog

Introduction

Ok so the reason for this Blog is not self-pity or sympathy but for awareness, sharing updates with friends and family and a platform for my better half and I to seek advice and maybe for us to vent our frustrations from time to time. 

Now you're probably wondering WTF is she drivelling on about, where is this going and for those of you I have not already told, I am truly sorry. It has all kind of happened so fast and swept us off our feet, turning our world upside down.

For a while now I haven't been feeling to well, having migraine attacks and on occasions passing out along with other side effects too. My GP was fantastic and ran a few tests before referring me to see the Neurology department at The Luton and Dunstable University Hospital. They sent me for further tests and a MRI scan. On Monday 11^th of May we got the results, thinking my nice Doctor would say I suffer from some bad migraines, here’s some tablets go away but no, one of the worst things I think I have ever heard a Doctor say to me in my life…..” We have found an abnormality on your brain scan!”

OMG!! We'd laughed and joked before the scan, you know the usual shit like “are you sure they will find your brain?” Not expecting something serious to be wrong because really it couldn't possibly, could it?

It was just like you see it in the movies, everything else the doctor was saying was gobbledygook, just total blah blah blah. I remember Cat holding my hand so tight and the Doctor words “you have an AVM in your brain!”. It didn't make sense. Why me?  Are you sure? How serious is this?

The Doctor still had a smile on his face, maybe it wasn't that serious, and he was still smiling after all. Can they fix this?

I swear, so many questions and thoughts went through my head in those first few moments it was surreal. I can't even remember most of the questions I asked myself.

The Doctor told me to continue on the medication he had prescribed at my last visit, which had stopped the passing out episodes but now he was telling me they were actually seizures. Flipping great….just another thing to worry about. He was also referring me to the National Hospital for Neurology and Neurosurgery in London to see a board of specialists to see if the AVM is treatable. 

SHIT A BRICK….this is serious!!